Thursday, 1/16/14
We are at the hotel in Rochester recovering from the day of pre-operation testing. Tomorrow Katie gets a super duper heart. 7:30am EST.
Friday, 1/17/14
In waiting room at cardio-pediatric care unit. Katie is in surgery. Prayers for my daughter please.
She is all prepped and ready. Should be starting the cut any minute. They seem about an hour behind schedule.
Katie is out of the OR. She is doing great. They fixed everything. Surgeon said he would be very surprised if she ever needs another heart surgery. They made the right choice doing the surgery early. We got to see her for a moment. She looked beautiful. The rest of the day is critical and we have to avoid infection but there is no hint of a problem at the moment. Thank you everyone for all the prayers, thoughts and well wishes.
Still doing great. She is opening her eyes and stirring. She is taking her own breaths over the ventilator so they are slowly weaning her off. Goal is to remove the ventilator tomorrow morning. Thank you for all the continued support.
I also wanted to thank all the blood donors out there. For Katie to have the surgery she had to receive extra blood to run the heart lung machine. Someone out there helped fix her heart today by donating their blood. We are thankful.
Saturday, 1/18/14
Ventilator is out. Breathing on her own, like a Champ!
Healing.
Sunday, 1/19/14
It is a great morning. All the big IV lines are out! She only has a tiny one in her foot. Oxygen is coming off as soon as she wakes up. The incision dressing is off and looking good. She is even wearing a shirt. We can pick her up whenever we want. Next big step is eating!
Sleeping peacefully
Monday, 1/20/14
Doing good!
The official white board in Katie's room says our goals for the day are 1) Eat, 2) Cuddle. Sounds perfect!
Tuesday, 1/21/14
We get to go home when the chest tube drains less than 20mL in 24 hours. Katie's numbers have been 100mL, 75mL, and 35mL the last three days. Chant with me <20, <20, <20!!!
Daddy time, in our cute jammies!
Wednesday, 1/22/14
Katie's continuing to recover and beginning to smile again!
24 D'oh. One more day. We did get two smiles so we will take it!
Here is our hangout. Crib, couch, rocking chair, TV, bathroom. Very nice.
Some more pics of our recovering little girl
Thursday, 1/23/14
We are totally unplugged and waiting impatiently to bust out of here! Notice our super duper heart jammies!
Out of here. 13° and snowing. Happy day!!
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