Katie is doing wonderfully at her one month cardiology visit.
She has gained 14oz in 14days, which is amazing, especially since she is
exclusively breastfed. Her heart is looking great, functioning well, and
her oxygen level is normal (which is amazing for her heart condition).
So the hard part is...she is doing so well that they want to do the surgery soon. She is an excellent candidate, since she is thriving, to try to save the pulmonary valve. To do that, they need to do the surgery in Jan/Feb time. She is so strong and healthy they think she will bounce back after surgery with no trouble, even with doing it at the young age. And if they save the pulmonary valve then she will probably not need another surgery later in life.
So, the next steps. The doctor is going to put her on the list to be discussed with the other cardiologists and the surgeon either this week or next. If they all agree with the doctor that we saw, then I will get a call a few days later to set a surgery date. There is a possibility that the doctors will not agree, and this whole plan will change. However, if it does go according to plan, we should know when her surgery is in the next few weeks.
With the weather so crazy in Dallas right now, my mom is going to stay until we hear when the surgery is. We will evaluate then if it makes sense for her to go home and then come back, or just hang out here.
We really appreciate all the support and prayers. This is going to be tough, but we fully know that God has a plan for Katie and that the doctors know what to do. This is a real lesson for me in learning what I cannot control and following God.
So the hard part is...she is doing so well that they want to do the surgery soon. She is an excellent candidate, since she is thriving, to try to save the pulmonary valve. To do that, they need to do the surgery in Jan/Feb time. She is so strong and healthy they think she will bounce back after surgery with no trouble, even with doing it at the young age. And if they save the pulmonary valve then she will probably not need another surgery later in life.
So, the next steps. The doctor is going to put her on the list to be discussed with the other cardiologists and the surgeon either this week or next. If they all agree with the doctor that we saw, then I will get a call a few days later to set a surgery date. There is a possibility that the doctors will not agree, and this whole plan will change. However, if it does go according to plan, we should know when her surgery is in the next few weeks.
With the weather so crazy in Dallas right now, my mom is going to stay until we hear when the surgery is. We will evaluate then if it makes sense for her to go home and then come back, or just hang out here.
We really appreciate all the support and prayers. This is going to be tough, but we fully know that God has a plan for Katie and that the doctors know what to do. This is a real lesson for me in learning what I cannot control and following God.
"This is a real lesson for me in learning what I cannot control and following God" - A.M.E.N.
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